GoFundMe; Ashley Akins Passes Away, Cedar Lake Indiana Resident

Ashley Akins has now passed away.

From June 9, 2015, through April 17, 2022, this is her story.

Since she was a baby, Ashley Akins has been a fighter. She underwent three cardiac operations and received a pacemaker. Every moment spent with our 6-year-old is a miracle in and of itself because of her extremely unusual heart condition. Due to her heart’s increased activity, Standford planned her pacemaker’s battery replacement for last Monday. When the surgeons informed us that they had to stop the procedure because her blood pressure was dangerously high after 2 and a half hours of anesthesia, they made the greatest decision to keep her anesthetized and continue with more testing.

According to tests, one of her arteries was pressing against her left lung, her artery was pinched, she wasn’t receiving enough oxygen, and her heart’s chambers were distressed because one was receiving too much blood flow while the other was receiving only a little. On Monday, after her blood pressure had safely dropped, a balloon was placed on the low-sided chamber to allow for more blood flow. For added assurance, a CT scan of her brain was performed. They arrived to inform us that she recently suffered a stroke. I told the physicians that she recovered completely differently from her previous surgery, and that one of her eyes can now move.

Instead of running a CT, the doctor at the time referred us to an eye doctor, who found nothing concerning. Her primary doctor explained that the reason for this was all the medications she was taking at the time and said a CT wasn’t going to be done. On Wednesday, the Stanford team made the decision to return and change her battery. Ashley had been sedated for three days when they brought her back to surgery, and they estimated that the procedure would take three to four hours. Due to scar tissue, we missed our daughter bleeding out in her major vein for 11 of the 24 hours that Ashley’s surgery took because of problems.

They had to reconstruct her chamber flaps in redirction and include shifting the candycane-shaped artery because it was pressing against her lung. She was born with these complications as well as upper and lower chambers on her right side that connected incorrectly. Her liver wasn’t working, but now that she’s on dialysis, it is, and it may take some time for her kidneys to start working again. Her blood pressure fluctuates, she has a fever and nearly developed hyperthermia, and she developed a sore on her tailbone from spending so much time on the operating table. She has four chest drainage tubes. Read more

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